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Patients Partnering in a Pandemic
If you missed the 2021 NPFE-LAN Summit, you can now watch the sessions online. Don’t miss talks about the state of ESRD care by panel sessions led by the Centers for Medicare & Medicaid Services, ESRD Networks, and ESRD patients and family members. Patients, family members, and kidney care providers from across the country attended this first ever virtual event, and now you can join.
If you have any questions about this Summit, please contact the ESRD NCC at nccinfo@esrdncc.org.
Day 1 Agenda
Monday February 22, 2021 - 11:00 am to 4:00 pm
| SESSION # | RECORDING | TOPIC | DESCRIPTION |
| 1 | Watch Recording | Welcome and Introductions | Welcome to the NPFE-LAN Summit from CMS leadership and the ESRD NCC. |
| 2 | Watch Recording | Best Practices for Coping During COVID-19 - Patient Panel Discussion | CMS leadership leads a patient panel discussion on how patients have coped during the COVID-19 pandemic. |
| 3 | Watch Recording | The Road Home | A patient led panel discussion on the challenges and benefits of home dialysis therapy. |
| 4 | Watch Recording | Myths and Barriers Related to Kidney Transplantation – How We Can Overcome Them | A patient led panel discussion on the barriers patients face getting on the kidney transplant waitlist and what actions they took to get transplanted. |
| 5 | Watch Recording | Be the Captain of Your Own Care Closing Remarks |
Two patient advocates share their experiences facing kidney disease and their hopes to improve kidney disease patients’ lives. |
Day 2 Agenda
Tuesday February 23, 2021 - 11:00 am to 5:00 pm
| Session # | RECORDING | TOPIC | DESCRIPTION |
| 1 | Watch Recording | Welcome and Introductions | Welcome to day 2 of the NPFE-LAN Summit from CMS leadership and the ESRD NCC. |
| 2 | Watch Recording | Should People with Kidney Disease Get the COVID-19 Vaccine? | During this session attendees will understand the risks of COVID-19 in patients with chronic kidney disease, learn the potential side effects and benefits of COVID-19 vaccines, and receive information that will help you make an informed decision about getting immunized against COVID-19. |
| 3 | Watch Recording | Health and Safety at Work During the COVID-19 Pandemic | This session the presenters will provide work place health and safety tips, review rehabilitation and employment services available for kidney patients, and share patient work experiences during pandemic. |
| 4 | Watch Recording | The Power of the Patient Voice – Being an Effective Subject Matter Expert | Leaders from patient advocacy organizations share how they use their voice to impact change in how kidney patients receive care. |
| 5 | Watch Recording | COVID-19: Staying Safe in a Multigenerational Home | This session will provide tips for staying healthy during the COVID-19 pandemic while living in a multigenerational home. |
| 6 | Watch Recording | You Are Not Alone – Coping with Loss & Grief During a Pandemic | Grieving while coping with the fear and anxiety related to the COVID-19 pandemic. |